Living with lupus can be a journey of ups and downs, but one thing is certain – every person’s experience is unique. In this blog post, we’ll share an inspiring story of resilience, hope, and determination. Get ready to be motivated and empowered to take control of your own journey.
In 2016, I was diagnosed with Lupus and Sjögren’s Syndrome, two chronic autoimmune conditions that dramatically changed the course of my life. Like so many of you, I was faced with pain, fatigue, and deep uncertainty about what the future would hold. I was fortunate enough that from day one, my Rheumatologist emphasized the importance of nutrition, eating “clean” food and exercise in trying to help manage these conditions.
I took his advice and I changed my diet, I committed to movement – gently at first, but consistently despite how tired and sore I was. What began as part of my treatment plan evolved into something far more powerful, running became my sanctuary, my therapy and my personal declaration of strength. I went on to complete many marathons, each one a victory, each step a reminder that illness does not define me.
This year, on Sunday, 8 June 2025, I attempted one of the toughest ultramarathons in the world, the Comrades Marathon. It was a dream I had carried for years but I did not arrive at the start line unscathed. In the weeks leading up to the race, I had a severe case of bronchitis – I was struggling with Iliotibial Band Syndrome (ITBS) which is a painful condition that had impacted my training and left my knee vulnerable. Despite all this, I still chose to start the race. I knew I was carrying an injury, but I also knew I was carrying a story – my story.
I gave it everything, I pushed through discomfort, focused on my pace, and stayed mentally strong – but just after halfway, at the 48km mark my knee said “not today” and I could no longer continue – I had no choice but to retire. I didn’t see this as a failure, I seen it as a triumph as I qualified, I showed up, laced up and I dared to try. I refused to let Lupus, Sjögren’s or an injury silence my ambition. The fact that I even stood at the starting line is proof of how far I’ve come since my diagnosis.
To everyone living with Lupus and/or Sjögren’s: I want you to know that movement is possible. It might look different for each of us—walking, swimming, yoga, or stretching—but for me, despite the setbacks, running remains my escape and my saviour.
Exercise has given me strength, clarity, emotional resilience, and a sense of control in a life often dictated by uncertainty. It’s not about chasing medals; it’s about honouring my body, one step at a time.
“I will not be defined by Lupus, I am defined by my strength in facing it every single day!”