Living with lupus can be challenging, but no one should face it alone.
Across South Africa, there are numerous support groups dedicated to helping lupus patients connect, share experiences, inspire, and access vital resources. These groups offer a safe space for individuals to receive emotional support, practical advice, and the latest information about managing lupus.
Whether you’re newly diagnosed or have been living with lupus for years, find a support group near you and join a community that understands your journey.
Why Join a Lupus Support Group?
Joining a local lupus support group can significantly impact your journey. These groups offer more than just a place to talk—they provide a sense of community, understanding, and practical help that can be hard to find elsewhere.
- Shared Understanding: Connect with others who truly know what you’re going through. Personal connection is always better than social media only interactions.
- Emotional Support: Gain encouragement, empathy, and advice from people who care.
- Practical Advice: Learn tips on managing lupus from those with firsthand experience.
- Access to Resources: Stay informed about coping mechanisms, treatments, studies, medical professionals, and local services.
- Sense of Belonging: Feel less isolated by joining a community that understands your journey.
National Lupus Support Groups
Lupus Kids and Family Support Group
The Lupus Kids and Family Support Group is a welcoming space where children and their families can share, learn, and have fun together.
It’s all about connecting with others who get it, while finding support, smiles, and encouragement along the way!
To find out more contact: 076 690 7763
Tweens & Teens Lupus Club
The Tweens & Teens Lupus Club is the place to hang out, connect with others, and get real about life with lupus.
It’s all about cool convos, making friends, and finding support from people who totally get what you’re going through!
The Tweens & Teens Lupus Club even has a WhatsApp group, so you can stay connected, share your thoughts, and get support anytime—right from your phone!
To find out more contact: 076 690 7763
Lupus Male Support Group
Though lupus predominantly affects women, men living with the condition face unique challenges that often go unspoken.
The Lupus Male Support Group is a WhatsApp-only support group that provides a space to bridge that gap, offering support and connection for men navigating life with lupus.
To find out more contact: 076 690 7763
Western Cape Lupus Support Groups
The Western Cape Lupus Support Groups provide strong local networks of care and understanding.
The Groote Schuur Hospital (GSH) Support Group is a WhatsApp-only support group, offering a space for patients who visit the clinics at GSH to connect and share their experiences.
The Western Cape Support Group covers a broader area, providing support across the region, while the Garden Route Support Group brings together those living in the Garden Route region. Each group is committed to offering resources, companionship, and a safe space for those affected by lupus.
To find out more contact: 076 690 7763
Eastern Cape Lupus Support Groups
The Eastern Cape Lupus Support Groups offer compassionate networks for those affected by lupus in the region. The Livingstone Hospital Support Group is a WhatsApp-only support group that provides a welcoming space for clinic patients to connect with one another. The broader Eastern Cape Support Group extends care across the region, ensuring no one faces lupus alone.
Both groups are dedicated to offering resources, understanding, and a safe environment for individuals touched by lupus.
To find out more contact: 076 690 7763
Kwa-zulu Natal Lupus Support Groups
The Kwa-Zulu Natal Lupus Support Group stands as a pillar of support and understanding in the province.
This group brings together individuals living with lupus, their families, and caregivers, fostering a community of mutual care. Regular meetings provide opportunities to share experiences, gain knowledge, and access vital resources.
The group is committed to improving the quality of life for all those affected by lupus in Kwa-Zulu Natal.
To find out more contact: 076 690 7763
Gauteng Lupus Support Groups
The Gauteng Lupus Support Groups create a strong network of care across the province. The Gauteng Support Group serves the broader area, while the Pretoria Support Group caters specifically to those in the capital city.
Both groups offer a space for individuals affected by lupus to connect, share experiences, and access valuable resources. These groups are dedicated to providing comprehensive support and fostering a sense of community among lupus patients and their loved ones.
To find out more contact: 076 690 7763
Namibia Lupus Information Group
The Namibia Lupus Information Group extends care and understanding across borders. This WhatsApp group provides a vital network for those affected by lupus in Namibia, offering a platform to connect, share experiences, and access essential resources.
The group is committed to raising awareness about lupus and ensuring that individuals in Namibia have a strong link to the broader lupus community in Southern Africa.
To find out more contact: 076 690 7763
Don’t see your region here? Contact us at helloCPT@andreasgift.co.za