Real Lupus Stories

Too Weak to Wipe Your Bum by Daniella Djan

By on March 2, 2024

The nurse pierced me with her tired eyes. “Sit,” she whispered with such intensity that her veins popped on her forehead and her lips quivered. I sat on the toilet seat as she watched me closely. It must have been two o’clock in the morning and she was exhausted. Emotionally drained by my constant need […]

Visiting Dracula by Daniella Djan

By on February 2, 2024

Taking blood for a lupie is a nightmare. You’ve got the elastic around your arm and the nurse slapping your wrist as she says “No veins!” or “Wake up!”, or in my case “She’s so dark you can’t see anything!” Taking blood for a lupie is about playing the poking game. We are human pincushions. […]